@abbeyc
Symptoms started Jan 2023, diagnosis April 2023. Prednisone of course. Could not get below 8mg. Dr started me on Kevzara April 2025. Self tapered off prednisone by 7/15/2025.
Today 5 months off Prednisone and have not gone back, no reason to.
Today 19 Kevzara shot, 41 wks on Kevzara, taking it every 3 wks.

“Suddenly” is a hard question. I go thru moments of improvement. As I said, those moments become longer , and the next stage is “an another step up in improvement “.

Have a wonderful holiday and great NEW YEAR, I plan to.

@abbeyc
I started to really feel better at least a month after I stopped the prednisone. Initially I felt almost as bad as I had at any time during my taper, but I decided that it was a withdrawal problem and that I would try to ride it out. I had a few incidents that caused a lot of stress, and I actually think that they jump started my adrenals, due to the amount of adrenaline I was blasting myself with.
The first incident was a fall.
The second was coming home to a plumbing emergency, which took a day to resolve.
The third was having some sort of food reaction that caused me to become dizzy and vomit (a lot) after a hot shower. That caused whatever adhesions that were impeding the range of motion in my upper arms to suddenly loosen up. After that I was able to do a lot more and start pushing myself more in PT.
I do not recommend that anyone try this at home!
I still take Tylenol, but I had my most recent one 16 hours ago and I don't think I would have noticed if I hadn't been writing this.