@colleenyoung thank you!
She has seen specialists, been to two different pain clinics, had some physical therapy. She’s on a feeding tube for life because of pain and stiffness in her jaw, severe dry mouth, swelling of the lips and tongue, intense pain, burning and feelings of pressure in the face, mouth and neck. She has plates in each side of the jaw due to necrosis of the bone, a skin graft on her neck due to a draining dental abscess that would not heal, tooth loss, near death from sepsis due to an infection in the area where the feeding tube attaches to her belly. These are just some of the issues. She is not able to speak in a way that people can understand due to limited mobility or the mouth and tongue. If she could get control of the pain and intense uncomfortable sensations she would be able to manage the rest.