← Return to Blood in Stool 3 months after Proton treatment

Discussion
robertov avatar

Blood in Stool 3 months after Proton treatment

Prostate Cancer | Last Active: 6 days ago | Replies (40)

Comment receiving replies
Profile picture for robertov @robertov

@jc76 My understanding jc. Also from reading your comments here. However, no one spent hours with me on anything. Which disappointed me as I expected time with my care team. Unless I specifically asked a question, no one said anything. Once Proton was decided, it was a conveyor belt of treatment activities and no followup. On the 28th I have my first post-treatment appt with their PA. We’ll see what she has to say.

Jump to this post


Replies to "@jc76 My understanding jc. Also from reading your comments here. However, no one spent hours with..."

@robertov
Sorry I don't know what to say as nothing I do can make up your disappointment.

I am a patient at Mayo Jacksonville. My care teams there are excellent also. I just had MOHS surgery and had 3 people in room at Mayo Jacksonville (one surgeon and two nurse technicians) constantly asking me questions and ensuring I knew the information I needed. Then called me at home. But not unusually to get called at home by medical doctors at Mayo Jacksonville.

I know we all don't have access to outstanding medical facilities like these an medical professionals and I constantly tell myself how luck I am when reading others posts.

Now UFHPTI. I had read post that some posters said never saw their R/Os after they started treatments. I saw my R/Os on my day of simulation, the day of first treatment, and then I saw my R/O or a substitute if not in every single week during my treatments.

I am not sure I can speak of all patients that went to UFHPTI but this is what happened to me. I do know my original R/O went on vacation and saw a different R/O while he was gone.