Anyone here with Hurthle Cell (Oncocytic) Carcinoma?

Posted by traceyjhp @traceyjhp, Sep 6, 2021

Hi Everyone
I'm new to the group and just wondering if anyone else has been diagnosed with Hurthle Cell Carcinoma? I've been on my journey a couple of years now. (Initially misdiagnosed but then a pathologist who was formerly with Mayo caught it which, of course, led to more surgery.) Anyone else? It definitely appears to be hard to find Physicians/ Facilities that are familiar with it.

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

Profile picture for Colleen Young, Connect Director @colleenyoung

@cmartin77, you can connect here with other members living with hurtle cell cancer like @traceyjhp @koh @cnicole @bfrank @skipeak @bevr @danielleckard @504branchie @medicalinterest @armichic @ahren2016 @ejjb and others.

Cmartin77, what treatment is being recommended for you? How are you doing?

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@colleenyoung thank you colleen. i feel pretty positive about it now. have surgery scheduled on the 23rd to remove my thyroid. nothing else is being discussed until after that. surgery makes me worry but they sound like they do this a lot so i’m trying to not think too much about it.

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Profile picture for cmartin77 @cmartin77

@colleenyoung thank you colleen. i feel pretty positive about it now. have surgery scheduled on the 23rd to remove my thyroid. nothing else is being discussed until after that. surgery makes me worry but they sound like they do this a lot so i’m trying to not think too much about it.

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@cmartin77, thinking of you as you prepare for surgery.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@cmartin77, thinking of you as you prepare for surgery.

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@colleenyoung thank you so much! you are very thoughtful

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Profile picture for Colleen Young, Connect Director @colleenyoung

@cmartin77, you can connect here with other members living with hurtle cell cancer like @traceyjhp @koh @cnicole @bfrank @skipeak @bevr @danielleckard @504branchie @medicalinterest @armichic @ahren2016 @ejjb and others.

Cmartin77, what treatment is being recommended for you? How are you doing?

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@cmartin77 How did your surgery go? How are you feeling? Wishing you a fast recovery.

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Profile picture for ejjb @ejjb

@cmartin77 How did your surgery go? How are you feeling? Wishing you a fast recovery.

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@ejjb thank you. i’m recovering slowly. everything seems to have gone well. still can’t talk but they said that would happen so i’m being patient for now❤️

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Profile picture for cmartin77 @cmartin77

@ejjb thank you. i’m recovering slowly. everything seems to have gone well. still can’t talk but they said that would happen so i’m being patient for now❤️

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@cmartin77 I had my thyroid cancer surgery over 25 years ago so I really don’t remember everything so well. What I do remember is that TTalkingwas very difficult at first when I had to order food I remember at the deli department in the supermarket my voice was so low that the man couldn’t even hear what I was saying but gradually it will get better absolutely one day at a time!!! One of my vocal cords was also paralyzed and I was told it was never gonna come back again but it did so do not give up hope each day take one day at a time!!! wishing you the very very best of luck going forward!!! Keep your glass half full and go with the flow!!!

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Profile picture for lindaadele @lindaadele

@cmartin77 I had my thyroid cancer surgery over 25 years ago so I really don’t remember everything so well. What I do remember is that TTalkingwas very difficult at first when I had to order food I remember at the deli department in the supermarket my voice was so low that the man couldn’t even hear what I was saying but gradually it will get better absolutely one day at a time!!! One of my vocal cords was also paralyzed and I was told it was never gonna come back again but it did so do not give up hope each day take one day at a time!!! wishing you the very very best of luck going forward!!! Keep your glass half full and go with the flow!!!

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@lindaadele thank you so much for sharing that! I expect mine will come back as well❤️

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Profile picture for cmartin77 @cmartin77

@lindaadele thank you so much for sharing that! I expect mine will come back as well❤️

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@cmartin77 you’re very very welcome!!! One day at a time is the best way to go!!! Best wishes to you!!!

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