Did anyone else have a long struggle to getting a NETs diagnosis?

After being tested for one year at my local hospital gastro department, I was finally sent to the UK MARKEY Cancer Center in Lexington Ky for even more testing to obtain a NET DIAGNOSIS. I wasn't allowed to see the NET Dr because I don't have an actual diagnosis, but I did see the APRN. She did more blood work and I still have high Gastrin and Gga level's. She's ordered cat scan with dye on pancreas and liver plus genetic counseling. I was just wondering if anyone else has struggled at least a year of testing or longer before they were officially diagnosed with Neuroendrocrine cancer? What was the main test that the Drs diagnosed and started treating you, even with no NET discovery?