Connect
← Return to Are there suggestions for living with pure autonmic failure (PAF)?
Discussion
Are there suggestions for living with pure autonmic failure (PAF)?
Brain & Nervous System | Last Active: Dec 23, 2025 | Replies (42)Comment receiving replies
Thanks. I do walk every day, go to a Functional Fitness trainer and bicycle during better weather, when I can. I agree exercise is important. I tried Midodrine but I had a bad reaction. There just are times when I do light or moderate exercise and the have an episode of energy drain. It lasts for several hours and feels like a diabetic may feel. I don’t have low blood sugar, but need a protein bar right away. I always carry one with me.
Replies to "Thanks. I do walk every day, go to a Functional Fitness trainer and bicycle during better..."
Connect
@garychicago
I've had 2 or 3 episodes when I feel weak with trembles in my hands - like low blood sugar. Rspid improvement with glucose/sugar intake. There is literature explaining how autonomic dysfunction can contribute to dropping blood sugar by interfering with release of the bodies stored glucose in a time of need. Following up with PMD and neurology next month and not going for prolonged periods without sustenance.