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Hashimoto help, feeling defeated and desperate
Autoimmune Diseases | Last Active: 1 hour ago | Replies (28)Comment receiving replies
@aikomike Yes, I’ve been dealing with Long Covid for over 3 years now (December 14, 2022). I haven’t had one doctor treat my Long Covid, they just inform me that I have it, but not one has done anything to help me! I’ve done my own research and have tried several different treatments on my own. So far, I’ve had 7 Stellate Ganglion Block injections which are injections into your parasympathetic nerves in your neck line area that are of Lidocaine. The 7th injections took my PTSD/Anxiety way down. I also did acupuncture, which I don’t think did much. I am currently having Green Violet Laser Light Therapy through my Chiropractor’s office and that has given me glimmers of smells, but nothing lasts. I am also wearing a 7 mg. Nicotine Patch as it’s suppose to take inflammation away and possibly give you more energy. I have found the latter with the patch. It’s not a lot of extra energy, but I feel I can get more things done during the day while wearing it and I don’t take it off at night. I have never experience a bad dream or nightmare from wearing it. I don’t dream at all! I also, besides having Long Covid, have Hashimoto’s and Hypothyroidism. I take medication for the Hypothyroidism, but I stopped eating gluten, dairy and soy products for the Hashimoto’s, due to them being inflammatory foods and the bloat has stopped. I have researched treatments on my own as not one single doctor has helped me with that at all! Doctors are failing us right now and so I’ve begun my own research. The Chief of Neuro and Infectious Disease at Northwestern Chicago was worthless. He told me I would NEVER regain my taste or smell. He didn’t even have anything to back that theory up! Worthless! I’ve learned that if we don’t care for ourselves in this regard, nobody else will! Wishing you all the best in your healing.
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@lkirnbauer
Thanks very much for the reply. I"m writing because I'm rapidly losing confidence with the doctors with whom I'm dealing. While dealing with Long Covid I've not been able to get explanations from doctors concerning treatments for various symptoms I've experienced, or as they prefer to call it, PACS.
I'm finding solace on these forum sites. I've recognized there's a lot of us out there.
Initially, my primary care physician told me there was nothing for me - I'm on my own - This was 2022.
This opened the gates for me to do my own research, thinking , "What do I have to loose".
I found research papers concerning experimental treatments, that indicated a probiotic therapy had reduced recovery times of people dealing with LC symptoms. I found a probiotic, "immune strain" that helped with my initial episodes.
The early episodes lasted about a month, or so, Which I considered manageable.
This episode however, has affected every part of my body from head to toes, and also depleting many bodily functions, lasting 3 months, and counting.
This led me to look into iodine deficiency.
I had symptoms ranging from Fatigue, Brain fog; Confusion, Smell, taste, depression, gastrointestinal,etc,etc.
This time, the scary symptoms were the mental and vascular symptoms. There were days I felt I was beginning to show signs of dementia, then Alzheimer's.
After this,the vascular symptoms started.
As I said, all my symptoms have diminished over the last 6 weeks. Even my smell and taste clearly came back.
You might be thinking , fine, but what has this to do with my Symptoms?
The thing is; I never realized how LC can affect so many bodily functions.
We might treat the symptoms, individually, but the main cause is still within us. I read that anywhere from 10%, to 18% of people dealing with covid infections, are dealing with this Long Covid illness in it's many manifestations. (That's approx 20 million people).
At the moment, I'm looking into viruses lingering within our bodies, that can be dormant, but become reactivated due to covid infections.
From what I understand, this is when the body needs a healthy thyroid, - and how the body utilizes iodine.
I'm not saying this is fact, but it is food for thought,
I'm reading, It's not just people dealing with Long covid who are dealing with many of these symptoms.
P.S. I've read recently that doctors and nurses used diluted iodine nasal, and throat spray to thwart covid during the pandemic. I was not aware of this until reading the research papers.
I had a cardiologist's assistant call me today, asking if I would be interested in getting a heart scan. I rejected it as I really don't think it would be of any use. I've come to believe that if my Long Covid illness continues, in the future, any of my many symptoms will result in possible organ dysfunction, with possible terminal results.
I've tried to be concise, but it didn't work out too well.
All the Best.
Mike