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Erosive oral lichen planus

Autoimmune Diseases | Last Active: 2 hours ago | Replies (291)

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Profile picture for bestoflife @bestoflife

I always check into this group to see what's new and find that most of the time I find very helpful information. What I would like to find out what your OLP looks like. Mine never goes away. I pull back my lips, and those glaring red gums are looking back at me, nothing like they used to be. My cheeks have many white lesions and must be slightly swelled as I have frequently bitten them in my sleep. Also what areas on the gums that almost look like bone coming through. I am wondering if an others mouth is similar?

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Replies to "I always check into this group to see what's new and find that most of the..."

@bestoflife I'm right there with you with my OLP never going away. It seems you have had some improvement since you are saying your gums aren't like they used to be. Are you using something that you believe has worked? I'm always looking because I think there's an answer out there. I just have to find it! My oral surgeon prescribed clobetasol proportionate which is a steroid. I've used it when I have lesions. I asked for something less aggressive because steroids thin the tissue, which seems so counterintuitive when the disease process does the same thing. I now have a steroid that is less intense. I'm working with a periodontist. While I, by nature, resist using medications, I'm following his advice and using the steroid for 14 days consistently to see if I notice a difference....day 1 and counting..

@bestoflife I too have very red gums, they look spongy to me on the top set with red and white, redder and swollen on the bottom. Thank god when I smile I don't see my gums. They are always tender and if they get nicked they will bleed. That was how I realized something was wrong, originally I bled a lot. Then the white striations came, and then the sores in the bottom mucous or on the outside gum of the tooth. White puss looking things. Brushing teeth OMG that was awful.
Since the Dentist didn't know, they said go to your Doctor, The doctor did blood work and sent me to the ENT. That Dr did a buccal swab and gave me the Steroid Dental Paste.
After two weeks of that the sores healed, less white striations, and it's calmed down a lot. I found Toms Toothpaste with coconut oil. At least not as irritating to brush now. I avoid citrus , spicey foods, abrasive foods. No chips or crunchy. I also drink less alcohol, but one day at Christmas I had a few glasses of wine and that wasn't good. It flared again. I too wonder if the inside tissue is thicker/swollen... feels like it. Hoping it stays at bay with no open sores, like it is now but who knows.. @zinnia55 it's sad that the doctor's don't care enough to find a solution. I feel that is what's lacking in our medical system with so many specialist. Hard to find that one that will dig until they've figured it out. If I have another flare up like I lived will most of the summer I will ask about this mouthwash. Both doctors put Lichen Planus in their reports but neither has actually said those words to me personally. I'll see my Dr in February and I am going armed with information to talk about. I will consider a biopsy at some point too. All best to you all.