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Profile picture for the3ameffect @the3ameffect

@colleenyoung earlier this year, I told my PCP that I was struggling with these memories. He encouraged me to contact the patient advocate at the hospital to inform them of my experience. I thought that was going to lead to some help.

I had two phone calls where I recounted part of my experience to someone from the hospital. After the second phone call is when I started putting things down on "paper" so I wouldn't have to go thru the story again and to make sure I included all the details.

Instead of help from the hospital, I received a written response from the patient advocate apologizing that my "experience did not meet my expectations". I'll email you a copy of that letter if you would like to see it.

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Replies to "@colleenyoung earlier this year, I told my PCP that I was struggling with these memories. He..."

@the3ameffect, I regret that your hospital treated your story only as a patient complaint, to review possible mistakes made and to ensure future improvements to patient care. However, this did not focus on YOUR needs. In reading your story, I see that you are reaching out for support to untangle the mental and physical impacts of being in ICU. Let's talk about that.

Increasingly, medical professionals recognize that an ICU experience has lasting effects for patients and families. As such, more and more hospitals offer support groups or counselling after ICU. Some people find it traumatic to return to the hospital settings. That's why we created this online space to connect with other patients.

I'm so glad that you decided to post after reading discussions here for a few months. It takes courage to write that first post. Like you said, putting the experience in writing can be helpful.

Have you considered talking about your experience with a professional therapist? Do you think that might be healing for you?