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Primary Small Bowel NETS, Liver Mets
Neuroendocrine Tumors (NETs) | Last Active: Dec 23, 2025 | Replies (27)Comment receiving replies
@ricki8: I would love to learn about your Histotripsy procedure for Liver Mets, since I have multiple liver Mets from my sm. Intestine NET primary.
What size tumors were done?
Where was Histotripsy performed?
How long ago was procedure?
Recovery time & side effects?
Thanks for sharing with your peer NET patients. Bette. dbamos1945
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@dbamos1945
Hi again,
I have the same as you, discovered in Mar./23 I am Grade 2, Stage 4.
Histotripsy was done in Seattle, Wa. on May 17/24. I was put under for over 7 hrs.
As a Canadian, it wasn't covered here, so it cost me approx. $225,000. (CAD). Ouch!
As it was non-invasive (a targeted ultra-sound) there were almost no after affects. The anesthetic caused a bit of flue like symptoms 2 days later for approx. 4 days.
Approx. a 2 centimetre liver tumor was liquified (destroyed and did not come back).
Partial cavitation was done on approx. 4 others, with no growth yet on those.
Those not touched grew slightly.
I was on Lenvima from 11/05/24 - 06/25 and stopped it when I had a massive heart attack (flatlined) 06/26/25 (suspect it was the Lenvima), changed to Everolimus (which has very few symptoms). So far, I am stable, just waiting to see the results of a recent CT scan and will report if no growth.
I hope this can be helpful for others looking for alternatives.
Ricki