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Off Prednisone but still feeling new type of pain
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (60)Comment receiving replies
I went to my rheumatologist last week and mentioned I was in this support group and he made me feel as if I shouldn't be here and was questioning whether I have PMR at all (??) - what a roller coaster... So I decided to come off prednisone myself and have been off it for a week now. The pains and discomfort have increased but I listen to hypnosis for pain 2x/day and it helps keep me grounded and calm.
I read about the withdrawal phase in https://canadiancentreforaddictions.org/prednisone-withdrawal/ and am trying to let myself go through this uncomfortable phase and see if I can ride it out. Apparently the 2nd week is rough but I'm thankful it's Christmas so I'll be distracted a lot.
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@rosi75
This is the second time I have seen this link ... are you Canadian?
It doesn't matter where you are from --- I just want to say --- thank-you Canada. This is an excellent link to fantastic information!
I just wish that the information wasn't from the Centre for Addictions. Prednisone isn't "addictive." Prednisone is sneakier than an addictive substance like a narcotic. After secondary adrenal insufficiency happens, our body will start to tell us that it is "dependent" on prednisone.
I don't think this Mayo Connect forum is that bad for you. I have seen other online forums which seem to promote the use of long term prednisone way too much. Certain people on other forums are allowed to give out medical advice contrary to what a doctor will advise. I can see how doctors get negative impressions from online forums. I guess we are free to chose whoever we want to listen too.