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Looking for someone who has axonal sensorimotor polyneuropathy
Neuropathy | Last Active: Dec 22, 2025 | Replies (29)Comment receiving replies
Hi two days ago I was diagnosed with severe axonal sensory polyneuropathy and peroneal palsy after having an EMG. I don't know how to process this because for almost 10 years I was told it was all Fibromyalgia. Almost 10 years of basically being told the pain is all in my head. I'm currently on the max doses of gabapentain and due to a recent increase in pain, numbness and tingling I'm also on tramadol which does absolutely nothing. But I have been so trained to DEAL with it I'm not sure how to ask for anything stronger. I'm so angry!
Replies to "Hi two days ago I was diagnosed with severe axonal sensory polyneuropathy and peroneal palsy after..."
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Welcome @kei33, It's OK to be angry. Dealing daily with pain for so long is just plain awful. I think what might help is learning as much as you can about your condition may help you learn about new or alternative treatments that provide some relief. I'm sure that you are not alone and there are other members here on Connect that can relate to what your symptoms. There does seem to be a connection between nerve damage and Fibromyalgia. Here's some information that might help explain it - https://www.fibromyalgiafund.org/small-nerve-fiber-damage-in-fibromyalgia/.
Do your doctors think that the new diagnosis of severe axonal sensory polyneuropathy and peroneal palsy is in addition to the Fibromyalgia or that you don't have Fibromyalgia?