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Anyone with autoimmune problems taking Prolia for osteoporosis?
Autoimmune Diseases | Last Active: Jan 31 3:06pm | Replies (73)Comment receiving replies
Hello. I have hypothyroidism for 24 years. Diagnosed with osteoporosis several years ago. Just started taking prolia in May - no issues just got 2nd shot in November and experiencing hair loss. Had hair loss issues before - figured out my hair color caused hair loss. So stopped coloring my hair. Now I am back to losing hair again and believe it is due to Prolia. Never had any broken bones thank goodness but the hair loss is quite upsetting so will contact Dr not sure what they will recommend. Don’t like the idea of medication in system for 6 months. Fosomax bothered my stomach so that is why I am on prolia. Very frustrating as never like taking any kind of medication due to side effects. Thanks for everyone’s comments. Sometimes feel like I am all alone with this diagnosis since no obvious conditions .
Replies to "Hello. I have hypothyroidism for 24 years. Diagnosed with osteoporosis several years ago. Just started taking..."
@maryellen22 , I too had hair loss on Prolia. I was switched to RECLAST. I now have Exocrine Pancreatic Insufficiency and Colitis. RECLAST should not be used if immune deficient and have mal absorption. I do.
I never had osteoporosis, just osteopenia. Drugs can cause a drug spiral. Be careful out there.
@maryellen22
I have severe osteoporosis also. I took the Evenity shots for a year with good results. I am now on Prolia. I have had 2 shots so far with no side effects. I was diagnosed with PMR 2 1/2 years ago. I take 2 mg of prednisone daily (down from 20) . I have been slowly tapering to get off the prednisone since it is awful for your bones. About 7 months ago I started taking methotrexate. Started at 4 mg and now at 8. Little to no side effects and it has helped me taper off of the prednisone. I was worried about the side effects of Prolia but was happy not to have any problems. I’m a 62 year old female.
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@maryellen22 I have an autoimmune diagnosis and have also gone back to the more cheerful diagnosis of osteopenia. I didn’t know until your post that hair loss can be attributed to prolia. I thought it was due to my old age.
However, I had 3 trip and falls between 2018 and 20024 that required emergency room visits for head injuries and sutures for 2 visits. Following my MD’s advice, I had a series of visits to a physical therapist. I also accepted use of a forearm cane for balance.(a chronically unstable ankle).
I have always rejoiced that Prolia saved me from broken bones! Glad that I didn’t know to blame Prolia for hair loss.