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Familial adenomatous polyposis (FAP): What Prophylactic options?
Colorectal Cancer | Last Active: Mar 26 7:28am | Replies (13)Comment receiving replies
@nanadana, welcome. You're asking good questions. I'm tagging a few members who have experience with a colectomy like @hopeful33250 @slippinjimmy @verol65 @rjjacobsen. They may be able to share some tips on how to prepare as you consider getting a prophylactic colectomy.
Like you, @tracy326 also has familial adenomatous polyposis.
@nanadana, according to Mayo Clinic, annual exams and genetic testing are important and you're doing that. Sometimes surgery is recommended:
- Familial adenomatous polyposis https://www.mayoclinic.org/diseases-conditions/familial-adenomatous-polyposis/diagnosis-treatment/drc-20372446
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@colleenyoung thank you for the FAP information link. I suspect I may have a desmoid tumour.I had an abdominal MRI done recently and the surgeon who had ordered it now wants me to have an abdominal CT scan. I keep forgetting to ask my doctor and the surgeon what can a CT scan show that an MRI wouldn’t? I have always assumed an MRI shows more detail than a CT scan. 🤷🏼♀️
I am reluctant to have the CT scan because the last time I had an abdominal CT scan I broke out in hives after drinking the CT contrast and was told I may be allergic to it, albeit not anaphylactic.