@athenasfury and no it’s not an adrenal tumor or phro, it’s either the HPA axis coming back online with overbursts of cortisol perhaps or the opposite, it’s kicking the bucket and sputtering out.

@athenasfury

Fellow Greek here with a bronze statue of Athena at home.

Everyone is describing the same disabling phenomenon that I also had - and ironically I’m also on IVIG and hydroxyzine 10mg stopped it. Turns out I do in fact have a major immune system issue with likely autoantibodies from COVID but also mast cell activation syndrome.

My 6th (I know, I’m a NP and I worked with immunosuppressed patients) infection u locked this horrifying am adrenal cortisol surge.

It has gone away since I switched to the antihistamine stack fexofenadine, levoceterizine, and famotidine. Just added montelukast (I had very elevated serum IL-13) and all of my long covid symptoms are quiet for the first time in 4 years. I am still out on disability.

I am so sorry to everyone suffering from this hell.

I picked up saliva cortisol tests from Eli.com and recently it shows I have barely any cortisol around 7am, so it sounds like a messed up hypothalamus - pituitary - adrenal axis with premature overfiring of the cortisol and or adrenaline 5am. Gave me horrific dry heaving and vomiting episodes. My LC doctor thought it was anxiety. This is way way way different.

Best of luck to add, consider getting the Eli.com home cortisol testing 8 pack for $100 and do the 1-minute saliva test right when I happens and see if this picks up a high cortisol level. Check it again 3 hours later.

Best of luck and keep praying for a miracle!!! Or for modern medicine to speed up the treatment of this horrific autoimmune post covid hell we find ourselves in.