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Hi. Paul here. I was diagnosed with PMR at 56 last February. I tapered off prednisone by October. My inflammatory numbers were good and I was declared in remission. I still wake up stiff in the shoulders and hips and have pain and I suffer from immobility. I was very athletic before this started. How can my inflammatory numbers be so good if I still feel like crap? When will I feel like myself again?
Replies to "Hi. Paul here. I was diagnosed with PMR at 56 last February. I tapered off prednisone..."
@phogan0609
I had my first PMR when I was 50, practicing a lot of sports. I took 3 months prednisone and when my reumatologist prescribed me only 2 mg for another month I decided to quit taking it.
I never returned to the old (active) me,..felt very stiff every day and worse in the morning. It did get better after 3,5 to 4 years. Playing golf with less pain and stiffness is when I realized I was getting better.
Now I’m back in the middle of a PMR flare after 9 years (59) and I’m taking 15mg of prednisone. For me personally I think stress has been the trigger both times. I also changed my diet to less sugar, no alcohol and more fruit. What PMR can do to your quality of life 🙁
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Hello @phogan0609, You will notice that we merged your discussion with an existing one on the same topic. If you click the link below it will take you to the beginning of the discussion where you can read the experiences of others on PMR remission.
-- PMR Remission: https://connect.mayoclinic.org/discussion/pmr-remission/
I think it's still possible to have PMR with normal inflammatory markers. It sounds like you might not really be in remission or possibly have something else going on? My PMR is in remission but I still am stiff in the mornings until I start moving around. You mentioned you are still having shoulder and hip pain and problems with mobility. Have you discussed the pain with your rheumatologist or doctor?