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← Return to Off Prednisone but still feeling new type of pain
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Off Prednisone but still feeling new type of pain
Polymyalgia Rheumatica (PMR) | Last Active: 3 hours ago | Replies (78)Comment receiving replies
How funny the timing here could not be more perfect. I was diagnosed with PMR 3.5 years ago as well. I have gotten to 1 mg of prednisone but with the pain always returns. My Rhuematalogist is convinced it is no longer PMR. My inflammation markers have always been normal throughout the entire process. So she asked me to have x-rays taken of my hips and pelvis area, which is where the pain resides. I have osteoarthritis in both hips and she is convinced this is where the pain is coming from. She prescribed low dose naltrexone 1.5 mm to start then increase to 4.5mg. This drug is available through insurance but only at 50mg dose. It was designed to treat alcoholism, but they are finding at low doses it is helping with pain and inflammation. I had to research online who would make it at a reasonable cost. My first quote was $275 per quarter. AgelessRX is $120 with a prescription. Something worth considering. I have not received it yet but am anxious to see if it works. Good luck to you.
Replies to "How funny the timing here could not be more perfect. I was diagnosed with PMR 3.5..."
@ddonnagirl1 oh and I am taking 5mg and pay around $125 for 90 day supply. I get From a local compounding pharmacy but am finding other lower cost sources now
@ddonnagirl1 don’t you find it odd though how may others don’t recall the other ailment aches and pains before PMR?
I too have osteoarthritis but it did not bother me this way 4 years ago. My doctors also try to blame it on osteoarthritis. Maybe it is and if that’s the case I think the steroids must have caused more damage.
Perhaps th doctors just don’t want to admit that.
Mine is similar case. Pred now 3mg . Methotrexate 20mg once a week. Shocking news received from Dr in Eye Hospital, my optical nerve has been affected. May be due to Methotrexate. Any such case and remedy for it will help me.
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@ddonnagirl1 yes you should try it.
My GP put me on LDN (without my Rheumatologist knowledge) because she is less conservative and turns to non-conventional treatments. The goal was for LDN to help get me off prednisone which maybe it did do. Hard to say. I started it 2+ years ago. I’m afraid to go off it because I don’t know what type of pain could return. I may try to some day.