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Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 21 hours ago | Replies (487)

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@lindabreathless
I have been on 25 mg Brinsupri daily for 5 weeks. I feel my coughing is less, my energy improved and less sputum though I didn’t produce a lot to begin with. I have BE and untreated MAC. My CT scan shows a reduction in nodules. No problems with medication but just started noticing the soles of my feet feel thicker on the balls of my feet. In some areas there are deepening fissures and peeling. Hands and rest of skin seem ok. This is definitely new as I usually have really soft feet. I don’t do professional pedicures (sanding of heels) and don’t wear a lot of sandals or go barefooted. So far, the foot issues are not painful or a problem. I am trying Amlactin or Urea lotion 2x/day to see if I can gently keep exfoliating. I am devoting extra attention to moisturizing all over. I would appreciate any other suggestions if anyone else is experiencing similar symptoms.

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Replies to "@lindabreathless I have been on 25 mg Brinsupri daily for 5 weeks. I feel my coughing..."

@gctaylor1 Thanks for posting these photos. I use prophylactically, especially in the winter, AmLactin Foot Repair Cream with 15% Lactic Acid AHA on my feet to ward off any potential thickening of skin, as I am also on Brinsupri (3+ months, so far no side effects except for feeling better, less coughing, less phlegm, better sleep, more energy!)

Because of the possible side effects on gums, I floss every day and use a recommended rinse after brushing/flossing, which I swish for 30 seconds before spitting out. The hygienist gave me a refresher on flossing, which I'm glad she did because I wasn't doing it correctly.