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I've had a CT but would prefer an MRI

Post-COVID Recovery & COVID-19 | Last Active: Dec 21, 2025 | Replies (18)

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@law59

I wanted to mention that I found out I had dysautonomia after I went to Mayo. This includes brain fog.

My doctors missed the conditions related to POTS and IST. The Holter monitor and Pulse Oximetry showed it. The fatigue is from extremely high heart rate regardless of exertion, body position, or even while asleep. My oxygen levels were also erratic.

The fatigue has something to do with - at least in part - obstructive sleep apnea. I'd given up on CPAP because it "wasn't helping", but I figured out I needed a different kind of mask that prevented leaks. So, I'm back on the CPAP wagon.

I've had every lab test in the world. I even paid $1000 out-of-pocket for extra labs from Function Health and for hormones. I was checked for over 200 areas of autoimmunity. I've had MRIs and CT scans (with and without contrast) of my brain. All normal. Almost three years with no answers. I thought I was going out of my mind.

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Replies to "@law59 I wanted to mention that I found out I had dysautonomia after I went to..."

@drbf I can so relate and if I may suggest wearing cpap as kong as your provider shares safe, whether awake or asleep like 8 hours at night, as I know even its pressure with these new post covid lungs for some can be triggering yet the benefit maneuvering symptoms. The next day seems easier! Quickest healing journey to you 🌈