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Has anyone been diagnosed with Meningioma with edema?

Brain Tumor | Last Active: 3 days ago | Replies (24)

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@dailygift
That’s awesome news!
So happy for you!!! I too, have incidental finding of 1.8cm meningioma, mild headaches and mild assoc/edema. I just saw neurosurgeon at Stanford yesterday who said I’m not a candidate for keyhole, EES, or cyberknife. There’s a 50/50 chance that it changes. I asked what she would do if she were me. She said she would wait 4 months and do another MRI to see if it changes. The first neurosurgeon I saw said I was not a candidate for watchful waiting. My third consult this Monday cancelled. After reviewing my file said he doesn’t treat these and would be better off getting a third consult from UCSF. My internist who referred me is now saying if I like Dr at Stanford to stick with her as too many cooks in the kitchen is bad.
If I wait and watch and it changes I’m looking at craniotomy which comes with risks. I prefer to wait but anxious about getting more neurological symptoms. Tough choices to make and looking at serial MRI’s.

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Replies to "@dailygift That’s awesome news! So happy for you!!! I too, have incidental finding of 1.8cm meningioma,..."

@as72 ultimately what helped me relax about this was the result of my followup MRI. Seeing no change helped me AND the doctors realize I could wait. Any procedure has risks and we and they have to weigh risk vs. benefit. So they think about what can happen if you wait. Lesion can get bigger. With evidence of no change in an interval of time they were more comfortable saying ok to wait. I understand not everyone has this option to wait. We all have different tumors, locations, symptoms, etc. This has been my experience. I will be thinking of you and hoping your headaches resolve and you get no new symptoms! Keep in touch and take good care of yourself.