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MCTD: My Life Is Ruined And Doctors Won't Help

Autoimmune Diseases | Last Active: Dec 23, 2025 | Replies (16)

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@johnbishop Percocet is the only thing that has ever touched my pain. I've never abused it, I have no history of addiction, I'm in my 40s, I've been prescribed it before and didn't abuse it then. That's how I know it works so well. I also know that some doctor wrote in my chart I'm an addict so it's flagged. It's not true. I have never been one but I think that because they see I can't take NSAIDs or Steroids they want an excuse to dismiss me and my pain so they can just claim I'm an addict and "drug seeking" instead of helping me. It's absolutely ridiculous that I am not allowed to take this medication because other people have abused it, because there's an opioid crisis that has nothing to do with pills doctors are prescribing. The pill mill paranoia they were all paranoid about stopped years ago. The vast majority of overdoses now are from street drugs not from prescriptions. This is so bad that when I had surgery last month, actual surgery, I was sent home with 500mgs of tylenol for pain and "aromatherapy". I was in agony for three days until I eventually went to the ER and begged them for help. I'm literally being punished for something I never did. And don't tell me I can get this removed from my chart I've been trying to get it removed for years. They always say they can't remove it they can just "Put a note" there that the doctor can choose to believe or not. I'm screwed.

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Replies to "@johnbishop Percocet is the only thing that has ever touched my pain. I've never abused it,..."

@sporkwafflez There is another discussion where a member's mother could no longer get Percocet from her neurologist for neuropathy pain and it might help to scan through what other members shared to see if something might work for you.
-- Pain Pill Addiction and Neuropathy - Looking for Guidance: https://connect.mayoclinic.org/discussion/addiction-and-neuropthay-looking-for-guidance/

@sporkwafflez Wow. I had to look up MCTD because I never heard of it. Sounds pretty bad and I don't blame you for wanting Percocet. Doesn't it inhibit your bowels when you take it? And after a while, I know it wears off so you need a bigger dose. That may be part of the reason your doctors won't give it to you. Have you been on an antidepressant at all? Some of those ease pain and can be an advantage, even if you are not depressed. And seeking a therapist to talk to regularly about "these doctors" and the anger you have would seem to help too. I cannot suggest any other pain med myself; I have RA and scoliosis and have to rely on Tylenol. Other opiods would bind me up so hard that I would never be free of the constipation. I have IBS-C. Another miserable condition.