Tymlos success?

@dancinintherain
TYMLOS is absorbed into the bones. It strengthens, adds density and grows new bone. Whatever the chemical compounds is, it works just like your body should when making its own bone,,,,,,,,similar to plant food, you can take a wilted plant, trim it up, give it healthy soil and a dose of plant food and it will show new growth and existing foliage turns green and healthy again.

I truly understand your concern about the drug being new...but as far as I know, it is the fastest rebuilding drug available. No one wants to be a lab guinea pig, but you have to set those thoughts aside and realize "I need help, my bones could break just from a hard cough or sneeze. I am older, my bones are not absorbing like when I was 30, this medication works quickly, I will only take it for a short time, so far, so good, no side effects, I will be positive".
Would you have the same concerning thoughts if you went on another medication? Everything has risks, but the bigger risk is not treating the problem.

@rileyf I do too! Everyday. I have been on Tymlos for 6 months. I started titrating up to the full dose, to see how my body was responding to a new drug. Most of my side effects have been nausea, and overall feeling awful. My body just doesn't feel right at all. I stopped taking it 2 days ago, to see if I see any changes. I know my bones are not great. I have had compression fractures and other fractures. I feel I could crumble if I fell. But I also don't want to feel ill all the time. My whole life has changed. The once active woman is no longer there. I am 71 and I thought I did everything right.
It is so nice to have this support group. I appreciate all you ladies sharing hard decisions, your fears, and all the successes. It feels good to not feel so alone.

So far I feel fine but then again it’s only been 10 days. I am extremely worried about the effect of Tymlos on calcium levels in my blood and urine. I’m going to have a rems test done in January and I’ve yet to have a TBS done. I don’t know if those will change my decision but I continue to question if I’m doing the right thing every day!

@mamabear77 thank you for your thoughtful reply. May I ask what you are using now that you are off Tymlos?

@rileyf Still undecided. Am seeing a new endo next month (lots of impressive credentials) and am willing to listen and consider what she thinks. My previous endo, after spending an hour persuading me that Tymlos was the clear best option for me, suggested switching to Prolia when I reported the early side effects, especially the middle -of-the - night vomiting, and was very reluctant to give me anything for nausea. That seemed crazy to me..abandoning the whole plan for something less effective, rather than trying to help me ride out the side effects, knowing that they could well lessen, which they did. By the time the leg pains and awful fatigue came, she suggested I try restarting with a low dose of Tymlos, but by then it was a no sale. the pain had stopped after the first missed dose, as well as most of the headache. Clearly, most people don't have all the trouble I did...I want to be fair. I am by no means anti-drug, just feel strongly that we should find out all we can, expect good communication with our doctors, and respect your own smarts in matters that are this important. Blessings to you.