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Any connection between Neuropathy and MCAS?

Neuropathy | Last Active: Dec 21 12:25am | Replies (9)

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Welcome @nurse1963, Thanks for sharing your experience. I have idiopathic small fiber peripheral neuropathy but no pain, just numbness and some tingling. I'm glad to see that you have connected here with @pennycurious1 and @blaira. You mentioned environmental triggers, do you have any suggestions to help manage environmental triggers to reduce flareups?

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Replies to "Welcome @nurse1963, Thanks for sharing your experience. I have idiopathic small fiber peripheral neuropathy but no..."

Yeah live in a bubble lol! I am allergic to cat, dog, dust, mite, mold, grass, trees, ragweed, plantain, sorrel, wasp, and Yellowjacket’. Also heat and strong smells will trigger me. I try to follow a gluten free diet but that is easier said than done. It’s so hard when they say to avoid your allergens and everyone you know has at least 1 pet. I don’t just sneeze anymore-wish that is all that I do. I failed to mention that my dr did genetic testing on me and I also have a NLRP 12 deficiency so I have all 4 of these disorders working at the same time. During a large reaction I feel dizzy, headache, tachycardia, stomachache with diarrhea, flushing of face and chest, sweating, brain fog, muscle cramps. Then if you add the small fiber neuropathy on top of it I experience skin burning, itching, and pin pricks. Like I said daily to some extent. Xolair was always my go to med but I did try tezspire(sp) that seemed to be stronger. Had to get off it because of side effects. There is a new med that the FDA approved that my Dr wants me to try. It’s all about try and error.