Connect
← Return to PMR relapse symptoms
Discussion
Polymyalgia Rheumatica (PMR) | Last Active: 19 hours ago | Replies (72)
Comment receiving replies
@dadcue wow! I will have to read this a few times. lol
Sounds like you have a really good Rheumatologist and endocrinologist. I can’t find a doctor who will work with me the way yours does. I also gained weight after coming off Prednisone and I believe it’s because my metabolism is off and also from loss of muscle. I am searching now for functional doctor to address this.
I have complained about muscle pain but no doctor suggested CK blood test.
Thanks for sharing all of this.
I’m convinced I need to find a different Rheumatologist
So you are still on Actemra?
Replies to "@dadcue wow! I will have to read this a few times. lol Sounds like you have..."
Connect
@abbeyc
I have been on Actemra for 7 years with minimal side effects. Not only was I able to taper off Prednisone, I also discontinued many other medications which were treating Prednisone side effects. Some of those other medications were likely contributing to my pain as well.
It is called "polypharmacy" that stems from long term Prednisone use. My primary care doctor said she loves to deprescribe medications more than adding to a growing list of medications along with complicated drug interactions.
https://www.nia.nih.gov/news/dangers-polypharmacy-and-case-deprescribing-older-adults