There is a lot of need to do your own research for PmR. Knowledge is power. It seems doctors have no good answers about the condition so it’s up to us to confer with those who are dealing with it. I don’t know anyone in my community with it, as I ask almost anyone I speak about it to.
I just saw my endocrinologist today and he advised me at the 5 mg mark to get a blood test for my cortisol production before tapering any further. I wish there were a “team” of doctors to treat those of us with PMR as there are so many bodily functions that are affected by this condition and its treatment.
We have to be proactive to get the best outcome through this disease.