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Tumid Lupus with SLE Symptoms?

Autoimmune Diseases | Last Active: Feb 26 3:30pm | Replies (101)

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@gingerw

@ejlm Welcome to Mayo Connect. @johnbishop is correct, if you can get in to Mayo Clinic, it would be helpful. As you have posted here, I would add the following. Write down your timeline, with the pregnancies, and physical issues you have endured. All medications/ treatments/diagnoses. Did you ever keep a log or journal of when symptoms would appear [after eating something, or after activity, or correlating to other stressors going on at that time for example]. Any information you can provide beyond bloodwork results, will help to narrow things down. Being part of the medical journey and giving as much info as possible, helps you to feel in control of the situation, and being part of the team that includes your medical specialists. You may also benefit from the help of a counselor as you navigate through all this, for your mental health well-being.
Ginger

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Replies to "@ejlm Welcome to Mayo Connect. @johnbishop is correct, if you can get in to Mayo Clinic,..."

For the most part most issues show after times of prolonged stress. I wish I could say I have journaled but I have not. I pretty well count on being able to look back at texts I have sent my unt who is an RN and my medical files. Past that I very rarely have had time to sit and write anything down:(. Therapy at the moment is not an option with my husband in treatment and a farm to keep up with and a small business starting. I do not think going back to work is an option at this time.