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Profile picture for harryboy7 @harryboy7

@gowalking Very good vent, I thought and questioned everything you wrote about. I just wasn't sure how to voice it all.
Thank you for your candid note. I am sure many women here would say Yeah Yeah Yeah! Me too!

It sure is frustrating. So much MIXED information. The Doctors and PA's have only some knowledge of Osteoporosis, but only the basic information.

I too believe that women's health is a low priority. When you think about it, it goes way back in time where women weren't valued. I bet if the tables were turned, and Men were the majority with Osteoporosis, things would be so different.

It is so frustrating when you feel you did everything right, like you did, and myself and then you are diagnosed with severe Osteoporosis. I am 71.

You are one of the first ones relating to my problem regarding compression fractures which
can lead to organ compression. Since my thoracic compressions everything changed ( I lost 4 inches in height.) My stomach protrudes outward. Hard to look in the mirror, When I wore my brace in the beginning (had unstable fractures) I was short of breath also. Now it is definitely my abdomen. Now I am super constipated, Never was before my injury. Sometimes I get this awful sound-like water sloshing around in my gut. Its loud! Not sure what that is.

When I talked with a spine surgeon and PA, telling them about my concerns with this and the organ compression, they looked at me like I was nuts.

I have been on Tymlos for 6 months now. Everyday I feel nauseated. Every day I think of stopping. My body just doesn't feel right. I kind of don't trust the manufactures. They only know so much. When I have called them, there is never is a RN, PA ,NP available. Found out they don't have any Health care providers, only Pharmacist. Anyway, If I ask a question, they never have an answer.

Now look who is venting...haha. It feels good. Thanks for listening

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Replies to "@gowalking Very good vent, I thought and questioned everything you wrote about. I just wasn't sure..."

@harryboy7

Im curious as to the water sloshing sound you hear.

I googled "I take Tymlos, what is this loud water sloshing sound I hear in my stomach"?

Google it....quite common..a lot of info regarding some of your questions.

No appointment. No wait. No doctor looking at you like you're crazy. No payment due...hahaha Best doctor Ive gone to yet, Dr. Google

@harryboy7 I have had the same experience with the Tymlos manufacturer -- cannot get straight answers to my questions. In particular I question their standard dose amount of 80 mcg regardless of the recipient's body weight. I am 105 lbs and 5'5". Should I get the same dose amount as a 150 lb person? I think not. Even the lab rats in their clinical tests responded adversely to higher doses, with the male rats receiving the highest dose over 2 years developing bone cancer at a rate of 87%. I want to cut my dose to 60 or 70 mcg and cannot get any info as to potential outcome. Manufacturer is not helpful in this regard. After 3 months I still have side effects, especially dizziness.