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Tymlos success?

Osteoporosis & Bone Health | Last Active: Apr 29 8:07pm | Replies (35)

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Hi! I’m 63 and had dexa score of negative 3.2 in my spine. I am active and in good shape so it was a complete shock. I started Tymlos a week ago and far so good but I am most concerned with the long term side effects and the fact that I will be on meds for the next 20 plus years. I’m wondering if Tymlos was a bad decision given that it’s only been around for eight years. I can still go off it. Just wondering if anyone has long term experience with Tymlos or other anabolic medications and what the course of treatment was.

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Replies to "Hi! I’m 63 and had dexa score of negative 3.2 in my spine. I am active..."

@rileyf Tymlos is an excellent medication based on research so far. I have been on it 14 months now with small increases in both my lumber spine and hip. I would encourage you to stay with it, unless you are experiencing significant side effects. K

@rileyf Hello. My spinal score was -3.6...shocked, but not shocked, since I have had back pain for years, though without any fracture. I am 77, and the endocrinologist advised Tymlos, since I need to build bone, rather than just slow the loss. I had had a possible TIA, so Evenity was not an option, nor was Forteo. I took Tymlos for a month, and had an array of side effects, many of which eased or stopped over time, but some came later, and were significant enough to make me stop the drug . (Terrible fatigue and leg pains every evening, and the return of frequent headaches). Many people obviously have little or none of these, so I am not hear to say anything meant to be a generalized truth. But I do think that risk and benefit always need to be weighed, but especially if one is older. For me, to take a drug that would have me feeling like that for an indefinite time (two years??) was not something I am willing to do. I do not minimize the seriousness of my osteoporosis, and am exploring other options, and taking extra precautions. I don't know if this helps at all. I just feel strongly that each individual's overall health and stage of life need to be key factors here. It is also disturbing to me that doctors can disagree so widely on this subject. As a retired nurse, it seems that there should be more uniform guidelines by now. Wishing you success on whatever path you choose.