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Tumid Lupus with SLE Symptoms?
Autoimmune Diseases | Last Active: Feb 26 3:30pm | Replies (101)Comment receiving replies
I am 25 years old and have been diagnosed with tumid lupus. When a rash that looked big started appearing on my elbows I decided to see a dermatologist. The rash was also on my hands and feet with swelling. My doctor did a skin biopsy on my elbow and my result is tumid lupus. I thought I would share even though this is very new to me. Blood test have been taken to see if the lupus is more. I may sound not as educated with lupus and that is because I feel in the dark about it. I am not fair skinned or to my knowledge sensitive to sun. My eyes are my only sensitivity...in the last year have been extremely sensitive to Bright lights. I have had pain in my hands and back and neck for over a year now. I have poor focus that is diagnosed as ADHD and when I have chest pains I just accepted it was anxiety. I have always considered these to be apart of depression. Thanks for reading.
Replies to "I am 25 years old and have been diagnosed with tumid lupus. When a rash that..."
Holly, hand in there and read up on your diagnosis. But don't accept description until Dr gives you more details. Best wishes.
@johnbishop thank you for the support and response. My dermatologist advised me to wear medical sunscreen in my daily routine and to moisturize daily. I have two creams to help it as well and follow up blood work. I have the plaque rash and am recommended to cover my skin when outside. My hands burn and my feet but the elbows are way better with no rash. It disappeared. I was diagnosed with PTSD and anxiety and thought that it was just a stress rash. The pain I feel I also thought it was just symptoms of depression. My great grandmother was diagnosed with lupus but I found this information out after my diagnosis. My dad passed away from lymphoma as well nine years ago. I hope this isn’t overshare but I will be seeing someone I hope that can give me some more answers. My dermatologist was very helpful and caring towards me. The pain that I have had has been going on for years. When the rash on my feet started feeling like I had pebbles in my shoes that is when I decided to get everything looked at. The diagnosis is very interesting and puzzling and I hope that I find answers. @oregongirl thank you
Thanks for sharing John. I think we all need to really share in order to find things that are consistent between us to give us other ideas for research. Doctors seldom have the answers unless the blood work is a definite yes or no.
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Welcome to Connect @holley25 ,
I don't have tumid-lupus but do have several other autoimmune diseases. Connect is a great place to share your story and find out what other members with similar health problems are doing for treatments. One of the best things you can do to help yourself is learn as much as you can about your health problems. This will help you be a strong advocate for yourself and your health.
I’d also encourage you to view this discussion on Connect:
-- Tumid Lupus https://connect.mayoclinic.org/discussion/tumid-lupus/
You will meet fellow members @sandpiper09 @WendyAnne @jazzyuk51 @mnkennedy @tyoark @cammieb95 @thestruggleisreal. They have shared their experiences with various forms of Lupus, and I’m hoping they will be able to offer you some suggestions
Mayo Clinic also has some information on Lupus on their website here:
-- https://www.mayoclinic.org/diseases-conditions/lupus/symptoms-causes/syc-20365789
The National Institutes of Health has a good article "Tumid Lupus Erythematosus: An Intriguing Dermatopathological Connotation Treated Successfully with Topical Tacrolimus and Hydroxyxhloroquine Combination":
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3969703/
@holley25 -- has your doctor suggested any treatments or anything to help your symptoms?
John