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Anyone have ALK+ uterine inflammatory myofibroblastic tumor (IMT)?
Gynecologic Cancers | Last Active: Dec 30, 2025 | Replies (9)Comment receiving replies
Thank you! I sent a private message to @angcomeau but didn’t hear back. Thank you for trying to connect me with others.
I started taking Alecensa 6 weeks ago. So far, so good. I’ll have a scan in Feb to see if it’s been effective.
I did find Alkpositive.org. I’ve been able to find support with others who are taking Alecensa or other TKI’s for ALK + targeted therapy.
Thank you for your help.
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Hi @pn1998, As Colleen noted, I have ALK+ lung cancer. I was diagnosed in 2020 and have been taking Alecensa/alectinib ever since. The targeted therapy was effective for me, right away. Within the first week, I was feeling better. It was amazing. I'm hopeful when I see others that were in the initial clinical trials, that are still taking it after 11 years. I certainly experience side effects and living with any disease isn't easy, but I've learned to cope, and am happy to have access to this treatment over some of the others.
Is your blood work being monitored during these early weeks of taking the drug? Are you noticing any side effects?
Have your doctors said how long they expect you to continue with the Alecensa?