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Tumid Lupus with SLE Symptoms?

Autoimmune Diseases | Last Active: Feb 26 3:30pm | Replies (101)
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@sweetpea8458

I got diagnosed with Tumid Lupus about a year ago, my docs haven't tried any meds, and for about the last 3 weeks the rash has gotten really really bad again, I've been just dead tired, nothing i do gives me energy. I'm the 4th genaration to have Lupus, and that scares me cuz where it hasnt skipped a genration in 4 i worry my babies will get this darn disease. Anyways I've just got a question what do ya'll do the help with the tired feeling, r there meds out that help also.

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Replies to "I got diagnosed with Tumid Lupus about a year ago, my docs haven't tried any meds,..."
paulamiddleton | @paulamiddleton | Sep 21, 2017

I also have Tumid Lupus and I take the drug Plaquenil which is what is commonly given for this type of Lupus. I don't understand why your Dr wouldn't give u anything that makes no sense to me. -
As far as fatigue I really don't experience that a lot but if your diagnosis is Tumid Lupus I would defy ask my Dr about Plaquenil

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 23, 2017

Welcome to Connect @sweetpea8458,
Fatigue can be so debilitating! @lcamino @paulamiddleton have shared some valuable information; thank you.
I'd also encourage you to view this discussion on Connect:
Tumid Lupus https://connect.mayoclinic.org/discussion/tumid-lupus/, where you'll meet fellow members @sandpiper09 @WendyAnne @jazzyuk51 @mnkennedy @tyoark @cammieb95 @thestruggleisreal. They have shared their experiences with various forms of Lupus, and I’m sure they will return with some more insight for you.

@whyus @regeanna @butterflygirl, do you have any thoughts or suggestions as to how @sweetpea8458 can manage the fatigue?

Sweetpea8458, has your doctor suggested anything? Does this feeling of being tired last throughout the day?

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kdavis | @kdavis | Oct 29, 2017

Hi @sweetpea8458. I'm searching for info on Tumid lupus and inflammation and found this discussion. I've had Tumid lupus for 12 or so years. I have found that emu oil helps with rash. I use a brand that I buy on eBay. I don't take any prescription meds. Just spf 50 sunscreen every day. I would suggest that you have your vitamin d level checked. Mine was really low causing pain and fatigue. I still fight fatigue every day but it has gotten better with vitamin d and calcium.

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