@gowalking Very good vent, I thought and questioned everything you wrote about. I just wasn't sure how to voice it all.
Thank you for your candid note. I am sure many women here would say Yeah Yeah Yeah! Me too!

It sure is frustrating. So much MIXED information. The Doctors and PA's have only some knowledge of Osteoporosis, but only the basic information.

I too believe that women's health is a low priority. When you think about it, it goes way back in time where women weren't valued. I bet if the tables were turned, and Men were the majority with Osteoporosis, things would be so different.

It is so frustrating when you feel you did everything right, like you did, and myself and then you are diagnosed with severe Osteoporosis. I am 71.

You are one of the first ones relating to my problem regarding compression fractures which
can lead to organ compression. Since my thoracic compressions everything changed ( I lost 4 inches in height.) My stomach protrudes outward. Hard to look in the mirror, When I wore my brace in the beginning (had unstable fractures) I was short of breath also. Now it is definitely my abdomen. Now I am super constipated, Never was before my injury. Sometimes I get this awful sound-like water sloshing around in my gut. Its loud! Not sure what that is.

When I talked with a spine surgeon and PA, telling them about my concerns with this and the organ compression, they looked at me like I was nuts.

I have been on Tymlos for 6 months now. Everyday I feel nauseated. Every day I think of stopping. My body just doesn't feel right. I kind of don't trust the manufactures. They only know so much. When I have called them, there is never is a RN, PA ,NP available. Found out they don't have any Health care providers, only Pharmacist. Anyway, If I ask a question, they never have an answer.

Now look who is venting...haha. It feels good. Thanks for listening

@gowalking
I had Kypoplasty on T 12 and L3. There are risks but after 2 months of terrible pain I chose to do it. Constipation was chronic . Nothing helped including high price medications. I learned I had other compression fractures I was unaware of. I stopped Prolia in June 2024 and I know that contributed to significant and rapid bone loss. I have recently had colonoscopy endoscopy and nuclear med tests in an effort to fix the bowel issues but those tests were negative . I have just completed PT and now having problem holding my neck up and lower back weakness. I also experience sharp pain when my ribs touch my pelvis. I had thorough cardiac work up after extreme shortness of breath . It was determined that it was result of bones pushing on my diaphragm. I have kyphosis which I believe has worsened. Returning to spine doctor this week. I continue to exercise to strengthen lower body which is very important. I’ve loss 23 pounds so my focus now is eating more protein. I’m 76 years old and a year ago I was jogging, walking and working on ceilings. It’s important to have a physician or Nurse Practitioner who listens to you. In closing I had my first round of Evenity today. In one year I will need to go back on another drug. My life changed dramatically and I’m sure your life did too. But take one day at a time. I’m reminded that even if my circumstances are out of my control ; they are still in God’s control.