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Tumid Lupus with SLE Symptoms?

Autoimmune Diseases | Last Active: Feb 26 3:30pm | Replies (101)

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@kdubois

Hi @seesawer, I experienced all of the symptoms of lupus with no positive test results. Eventually, we figured out that I had drug-induced lupus, and all of the symptoms were caused by one of the medications I was taking at the time (called Sandostatin). My pharmacist actually figured it out by reading the full-lencg prescribing information found online. Instead of referencing the words drug-induced lupus, the documentation noted that some patients develop antibodies to the medication (or something like that).

In searching for others who have tumid lupus, try googling for online support groups, and look on Facebook. Facebook actually has thousands of support groups for medical conditions. These have helped me a lot; it's always nice to "talk" to someone who has been through what you have been through.

Best of luck to you!

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