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I've had bronchiectasis for over 30 years
MAC & Bronchiectasis | Last Active: Dec 19, 2025 | Replies (20)Comment receiving replies
@jnmy No infections in the last 4 years, No inhalers. Just deep breathing "Good Air In & Bad Air Out. When I exhale it is deep and as much as possible.
The doc. Suggested mucinex 2xday I stopped because it dried me out. That's when an older Chinese friend said go to the field & start chopping mullin leaves. They are ripe in the Spring so I harvest alot it, but also keep Mullin tincture on hand. You can buy the tincture on Amazon. Also exercise & spread those lungs out.
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@dogtag I may not have understood with all I have read here. Are you saying in the beginning you did the following;
1. Nebulized 2X a day.
2. ACT methods
3. Exercised
4. Took antibiotics for MAC infection
5. Ate healthy
6. Cleared the MAC Infection
However this is now:
1. No MAC infection
2. No Nebulizing .....just deep breathing and exercise
3, Eat what I want healthy or somewhat not.
For myself, I did not start the antibiotics with having a low load of MAC Intracellular (2023) and now. I do neb 2x a day, huff cough, percussion therapy, postural drainage and light 30 minutes of exercise daily. P.S. I am now 2 months into being 83 and often wonder....do I do this for another 7 to 10 years??????????????
I use to drink lemon tea years ago and got away from it habit wise...I need to add that to the types of "tea" I make now. Ginger Tea, Garlic Tea, Ginger and Cinnamon Tea and will finally make Mullin tea with what I have found at the international grocery store but will be boiling it first for ten minutes and then strain it. I made Tumeric Milk drink last year and need to do that once in a while. The Indian Grocery store carries fresh tumeric.
With BE and MAC Infections we all have to do what will help us physically, mentally and psychologically to keep us going and therefore we have to talk to ourselves and constantly make choices and decisions. NOT EASY or in the category of fun.
The pulmonologist visit last week had me hearing the doctor say to me, in a light hearted tone and manner, that it is insane for me not to go on the antibiotics. Because of who he is it did not bother me that he said it and I know he means well. He is one of the few in the OKC, if not the only one, that has been treating BE patients that have been to NJH and Tyler and worked with NJH and Tyler doctors with other patients. He sends the sputum vials up to NJH for testing. I was fortunate to have been told about him by my very good eye doctor.
If I understand correctly, and if anyone is reading this and can help me, my understanding is that the antibiotics won't help the inflammation and the Brinsupri won't help the Intracellular.????? If I continue to keep the MAC at a low load...I may be interested at some point to take the Brinsupri. Want more time seeing how all our comrades of the BE community are doing on it and if they are happy about doing it.
If you have more time to post I would appreciate understanding better your now picture of this BE journey.
Barbara