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I’m new to the support group just an hour ago .. haven’t even told my story yet but I just read your post . I’m thinking maybe suggest getting checked for a connective tissue disorder that may be causing a weak aorta making you destined for something like this . I found I have one and that’s what caused my dissection from my right leg all the way up my aorta to the arch where because of the dissection that occurred in 2022 showed a 4.8 cm aneurysm in my aortic arch .. it’s an easy test done my a geneotologist .. could save any siblings or children you have in the future if it’s hereditary .. just a thought

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Replies to "I’m new to the support group just an hour ago .. haven’t even told my story..."

@farmerken
I am also new to the group. I have a 4.7cm AAA with a bicuspid aorta heart defect. I also have Sjogren's which is considered a connective tissue disorder. Being monitored at this time through thoracic surgeon. What connect tissue disorder do you have and how is it being monitored in relation to AAA?

@farmerken thank you! I asked the surgeon I met with today and he didn’t seem too interested in pursuing that. I pushed a little and he said he’d could go ahead with it if I wanted to. I’m going to pursue this with my second opinion doc.