I have very few questions about PMR --- it is what it is.

PMR really isn't that complicated. The vast majority of my questions stem from how PMR is treated with long term prednisone. My PMR journey itself wasn't too noteworthy. What was incredible was everything that happened to me which had no explanation while I was treated with prednisone.

It is often said that PMR isn't destructive to muscles and joints and doesn't cause permanent damage. I can't think of any harm that PMR did to me except for all the pain. I can't say the same for my 12 years of taking prednisone daily. I wanted to be off Prednisone but nobody had any answers for how I was going to do that.

My problem isn't with Prednisone because in the short-term it works great. Before PMR was diagnosed, I actually had a lot of experience with taking Prednisone on a short term basis for other autoimmune conditions. What I wasn't prepared for was taking Prednisone on a long term basis for PMR.

After I tapered off prednisone it became clear to me what long term prednisone was doing to me. Technically, I still have PMR . I'm being treated with an alternative to Prednisone. I don't have all the other medical problems I had when I was taking prednisone. I struggle with not knowing why all those other medical problems happened,