Hi I wanted to add a few incredible doctors to the discussion. They are at Boston's Massachusetts General and specialize in this disease. The Pulmonologist is Dr o Donnell. he is the one that turned me on to exercise and the nebulizer, because pills are not tolerated. Dr Hurtado is the infectious disease doctor. She gave me so much info, talked for an hour. I'm such a dingbat i should have recorded it. Anyway, both great docs, they do tons of testing and so far medicare covered almost all of it. xo