Hi @joan912, Welcome to the MAC group on Connect.
I moved your message to a discussion that @chinasmom recently started, so that the group can start a list of recommend doctors across the nation (and internationally even). I understand you're looking for a doctor in the San Jose area.

See great info that @boomerexpert and @128128terry11t offered http://mayocl.in/2og8RBc
Boomer says:
"Use this link: https://www.ntminfo.org/patients/physician-referral-list"

Terry suggests:
"If you called Mayo or National Jewish, might they be willing to give you a name if there is no liability issue? When I went to National Jewish, they gave me names of experienced clinicians in my area."

Hi I wanted to add a few incredible doctors to the discussion. They are at Boston's Massachusetts General and specialize in this disease. The Pulmonologist is Dr o Donnell. he is the one that turned me on to exercise and the nebulizer, because pills are not tolerated. Dr Hurtado is the infectious disease doctor. She gave me so much info, talked for an hour. I'm such a dingbat i should have recorded it. Anyway, both great docs, they do tons of testing and so far medicare covered almost all of it. xo

Hi Colleen, I think I did it? but I see the comment here so not sure. xo

Thanks @unicorn. You did it. I see your post with the doctor recommendations.

@unicorn .. Christa you are NOT a "dingbat" .. you are one smart cookie .. AND have contributed wonderfully to our community .. I am grateful you are a part of us! Hugs to you! Katherine