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caroljeand avatar

Tapering prednisone while on Kevzara

Polymyalgia Rheumatica (PMR) | Last Active: Dec 16, 2025 | Replies (5)

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@caroljeand
I only had 5 mg tablets and was able to use a pill splitter to make 4 - 1.25mg pieces. I stayed at 5 mg for 2 weeks where I split the dose with 2.5 am and 2.5 pm. During that time I "tested" at 3.75mg several times. I was able to feel ok at 3.75 for 10 days ( 2.5 mg am 1.25 mg pm). I again "tested" by removing the 1.25 mg pm dose. I was able to move to 2.5 mg am only. I stayed here for 3 weeks with many "tests" into 1.25 mg. At this time I was 6 weeks with Kevzara and did many tests at 0 mg. My goal was to be off prednisone by Nov 1, Oct 30 was my last 1.25 mg dose. During the prednisone taper from 7.5 to 0 I had many hard days with most during the 5.0 mg to 1.25 mg time. I had neck pain, ear pain, headaches, toothaches, and fatigue. I kept up my physical activates and tried my best to stay positive. My notes show that it was hard. I thought I was having GCA symptoms, my blood was checked each month, by the time I was totally off prednisone all of the strange pains were gone. I am not sure how long I will be on Kevzara. I do know that it was dropped from the formulary for next year so I will try for an exception or see if I can get off of it also. The best of luck on your taper.

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Replies to "@caroljeand I only had 5 mg tablets and was able to use a pill splitter to..."

@lsa22
Glad it all worked out for you. I have 1 mg tablets so hopefully I can taper with the recommended 1 mg drop every 15 days. I’m currently at 5 mg so in about 10 days I’ll be down to 4.
Best wishes for us we don’t relapse🙏🏻!