@jandy88us yes my mouth as well. PET/CT scan didn't show anything neither did blood tests. I left mayo without a diagnosis...though in still waiting on results of a skin biopsy that was taken there almost 2 weeks ago.
I have been told basically to work on not thinking about it and trying relaxation techniques which is very pretty much impossible when living in constant pain that keep getting worse. I am so depressed and depleted I just don't know what to do. The pain meds only make my feel out of it and more wobbly but I'm in so much pain and .not getting any period of relief beyond the mild relief that standing in a shower can sometimes bring. I just don't know how to continue.