I started the prednisone in late January and 6 weeks later was when I went to ER with Pulmonary Hypertension. No contact with my PCP in between. I changed PCP’s in June because the original said she didn’t need to see me for 6 months. I have a Rheumatologist appointment tomorrow morning, but not having any expectations. Because she doesn’t live here, there is no follow-up provider if she were to give me medication. I’m pretty sure I’m going to be told there is nothing they can do to help me. My PCP has tried to find me a Rheumatologist since I started with him, he’s checked with every one in Central Oregon.
I have to practice acceptance that this is just the cards I was dealt and I either live in the pain, or live with it. Sigh.