Anyone experience sore feet or heel pain from Letrozole?

@lifetraveler
Thank you so much for your uplifting message.

I guess my main goal in writing this was to see if any one else has experienced these side effects for this length of time.

I’ve been beating my head against the wall for 15 years. I’ve been to so many doctors trying to figure out why I am in so much pain and have such fatigue. I am not accepting that I have fibromyalgia not that I have a problem with it I just don’t feel like that’s what it is but I have been told that by two separate rheumatologist. The other two said I didn’t have that, but they didn’t know what I had. I tested negative for rheumatoid arthritis.

Another thing I would like to share is even though I had a bilateral mastectomy and my ovaries removed and even though I stayed on the Famara for almost 5 years, I did still develop breast cancer on my right side. My first cancer was on the left side.

And even though I didn’t have a breast, my new cancer found just enough breast tissue that was left behind to get going again. I caught it very early and I had my third mastectomy 😜lol but I just like to remind people that you can never ever let your guard down when it comes to breast cancer.

It wasn’t an estrogen fuel cancer, and I don’t even remember what it is, but it had nothing to do with the other cancer. I went through the surgery and chemo and I am fine now no radiation or any type of after treatment.

Once again, thank you for your uplifting message and maybe you can share how important it is for women, even though they may have had a bilateral mastectomy you can let your guard down.

Keeping up on your check-ups is the most important advice I can give to our breast cancer survivor sisters ♥️

@mimistu12 :

Hi! mimi:

I am so sorry that you went through mastectomy 3 times:((! My heart simply aches upon reading this; however, your wisdom and perseverance still inspires me greatly! Thank God you are fine now!

As you said, we can never ever let our guard down when it comes to breast cancer! A good friend of mine went through her first BC surgery and radiation treatment without any AI medication afterward, developed recurrence on the same side a few years later and found out that she, too, carries the abnormal mutation gene; so she decided to have bilateral mastectomy and take Letrozole following that. These heart-broken experiences saddened me greatly, but we strive to overcome any challenges in life.

Thanks again, my friend, for reminding us the importance of keeping up on our check-ups and never letting our guard down!

I took Letrozole for 21/4,years.
At the 2 years point , I had heel pain and plantar fasciitis.

It also destroyed the muscles in my legs which would give out both above and below the knees of both legs.
Ended up with neuropathy from it.

I had to stop taking it.
One leg gave out and I ended up at Orthopedic urgent care and had to use a walker.
Now using a cane.
Was afraid to go on Exesmestane and end up with carpal tunnel syndrome and not be able to use a walker or cane.

Am trying hard to rebuild muscles.
No more AI’s.
Had to choose quality of life and walking.

@sassega
If it is on your Achilles tendon, on the back of your ankle, it is probably Haglund deformity.
I had an injury years before my cancer diagnosis but a bump developed after treatment.
I went to PT and that helps with the pain. (It looks like a small golf ball on the back of my ankle).
The PT exercises and walking help.
I won’t lie - when it acts up, the sudden pain is debilitating.

Yes, I have been on letrozole for 16 months. I started having foot pain a few months ago. It started out just in the morning, but now anytime I sit for 20 mins or more, when I get up the pain is bad. I walk like a duck because it hurts to let my feet bend until it eases up. I also now have heel pain. My wrist pain is also bad. I use ibuprofen and tramadol with minimal relief.

@ndozier Hi - not on Letrozole but Anastrozole. Over past 5 weeks have developed bad pain across top of toes left foot Am 18 months into AI therapy. Have quite a noticeable limp which is embarrassing. Only one foot affected thus far and hope the other does not follow suit. I’m hoping this will settle as I cannot take strong pain killers due to a pre existing kidney issue.

Tell your doctor at the next oncologist appointment or make an appointment to tell the doctor.
I used the patient portal where I could contact my oncologist about ALL my complaints. And I got feedback with PT to help work past the pain of ankle, foot and back pains.
It is better to address little aches and pains before they develop into another critical health situation.