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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (214)
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Profile picture for cinephile10 @cinephile10

@dbamos1945 Thank you so much for your answer. Yes, that's for sure, it's better to run all the tests, probably a CT scan also to see everything.
As for the numbers, it's actually considered "slightly" elevated : 131 (normal range < 100)
I talked to a friend surgeon who told me that tumors would give higher numbers, but somehow I still keep worrying... I lost my dad from a surgery so I guess a have a hard time staying zen for my mom when something comes back a bit "weird"

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Replies to "@dbamos1945 Thank you so much for your answer. Yes, that's for sure, it's better to run..."
Teresa, Volunteer Mentor | @hopeful33250 | Dec 15 8:07am

Hello @cinephile10 and welcome to Mayo Connect. I see that @dbamos1945 has responded to your post about your mom's elevated ChromograninA results and provided some helpful information. I can certainly understand your concern. Any time a medical test is outside the normal range, it tends to raise red flags. It appears that your mom's doctor is addressing this with an ultrasound. Will this be an abdominal ultrasound? Has her doctor ordered any other blood work or tests?

There are many factors that can raise ChromograninA levels. For example, taking PPI medications is one culprit, as well as other chronic health conditions. On Connect, you will find many posts on this topic. Here is a link to those posts. I would encourage you to read through them and perhaps post your question there:
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
How is your mom feeling? What other chronic health conditions does she have? Were there any symptoms that resulted in running this test?

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