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Peripheral neuropathy self help discovered.

Neuropathy | Last Active: 4 hours ago | Replies (10)

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Hello Martin @scuba1, Welcome to Connect. I'm glad that you found Connect. I also have neuropathy but only numbness and some tingling with no real pain. Just want to congratulate you on being your own advocate and learning what provides relief for some of the nasty symptoms. I'm 82 also but couldn't even imagine trying to do the full Camino Frances Route. That is quite an accomplishment, especially when neuropathy is tagging along with you. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

The Neuropathy Support Group here on Connect has many different discussions that you might find helpful. Here's a complete list - https://connect.mayoclinic.org/group/neuropathy/.

In case you haven't seen these sites, they have a lot of great information for learning more about neuropathy.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/treatments/
-- FPN YouTube Channel with helpful videos: https://www.youtube.com/@foundationforperipheralneu4122
--Neuropathy Commons: https://neuropathycommons.org/

Has your neuropathy affected your balance or is it mainly pain symptoms you have?

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Replies to "Hello Martin @scuba1, Welcome to Connect. I'm glad that you found Connect. I also have neuropathy..."

@johnbishop
Good Morning John..
Thanks for the info and thumbs up..., but like my wine, so have to put up with the twinge...the PN started about 4 months after the Camino. I self diagnosed it and 2 drs failedto...then one of my sons just booked me into the Spire clinic in bath to see a neurosurgeon and sure enough I was right.

I have a daily routine of either spin class or sauna and plunge pool which I have been doing for years., and I have been a gym bunny since god was a boy which in later life has paid dividends and at 81 I am not giving up drinking but have cut back bit.
Why take Tadalafil every day even if you aren't getting layed? ...simple answer is induced diabetes in mice has had remarkable recovery studies using Tadalafil and since erectile dysfunction is all about lack of blood, the ED allows dilation of the arteries especially around the sciatic nerve allowing higher oxygen flow over the damages neurons., at least thats my take on it, its also totaly harmless at this dosage..add to that the cold water plunge pool that numbs the legs ., and right now its bloody freezing I can dangle my legs in for about 15 minutes but cant submerse as its just too cold, and that gives me a good head start for the rest of the day.....I am allowed up to 8 co-codamol tabs a day but rarely take more than 2 and thats at night when the brain deicides to stop producing endorphins then the bad boy try's to kick in.... Conclusion:- Its working but requires dedication to a routine that I have been doing for years even before PN , and not one for taking the medical proffesion at face value...hope this helps . Regards Martin C

@johnbishop Hi John, you sound exactly like me, I thought I was reading about my journey with neuropathy. I am also 82, very little pain, just tingling, burning, which I believe Gabapentin helps with along with R Alpha lipoic acid. My chief complaint is BALANCE!! I have been active all of my life, still am gym, swim, water aerobics, which help alot. The balace is bad. Only use a walking stick when I know I will be in crowds, it is amazing how people react to canes, they are thoughtful, helpful and caring. I have heard that Walkasins do work. I know a man ( a Vet) who has him and they have corrected his balance. They are $10,000 sooooo unavailable to me. I am on their list, when and if medicare approves them. What is the answer to your balance problems? Oh shoes do help, Hoka Bondi 8 or the Ahari. Good shoes with arch and wide toe box a must. Oh well that is it for now, best wishes and Merry Christmas to all with this disease..

@johnbishop
Sorry forgot to answer...Yes on occasions, but that I think is because the reflex in my right ankle is defunked so trip rather than full especially stairs , but rectified by being more aware of the potential danger....
As to anyone wearing good shoes., I am fortunate that always had good shoes and agree entirely , but you can improve ordinary shoes but getting those cheap couple of dollars raised arch insoles from Ebay , AliExpress , Temu and just about any on-line far eastern site ., a couple of quid each , and chuck in washing machine too... I have them in ALL my shoes way before I had PN , and they transform how you walk