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Chronic small bowel obstruction from adhesions

Digestive Health | Last Active: Feb 12, 2023 | Replies (212)

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@amyp304

Went to Cleveland Clinic Jan 27th. ( rental car for week, thinking I would be there few days for testing. Hotels @ $130 per night with valet parking package (3 days))

Gastro Dr did initial consult, spent about 45 mins going over all medical records that were sent week before appt and discussed my health issues and concerns..yadda yadda..
Dr ordered MRE and was scheduled for the next morning, which I was really impressed with the Dr and how quickly they got MRE appt scheduled. Was feeling like finally!! I might get some answers to what is going on inside my body every day pain. After MRE was completed they told me the Dr would/should have results by the end of the day. So back to hotel to rest again.
No return phone call from Dr’s office 😞. I cashed Dr’s office next morning around 10:30ish. I was then informed me my prescription for that my test results were being MAILED by postal mail to my Primary Physician!!?!! I was.. to be honest.. very upset!! Explained to the lady on the phone.. Really!? I just drove over 800 miles one way.. and they weren’t going to have me come back too the office for a follow-up appt for the Dr to know ANYTHING of the results? 😤😡. Filters came off and told her how what I thought about how they just leave a patient just hanging!!?!! Very unprofessional in my opinion. (Then told her “ well.. that’s nice to know just another Dr pushing me away with no help or answers) 😪
According to “MYCHART online. Dr recommend for me to schedule appt with my Urologist due to having Urologist evaluate renal cysts on right kidney (which has been there for years). So now awaiting to see my Urologist, March 10th. Just another hoop to jump thru.. costing me about $2K round trip and watched that little possible light at the end of my 11yr fight with this pain progressing over time.
It is what it is.. but I’m not giving up without a fight.. one day I will bug the crap out enough medical professionals they ONE... just ONE will tell me they can help ease some of this daily pain and server swelling every time I choose to eat
I will update post when I hear anything.. maybe someone else may be going thru same health issues I am and maybe it will help them too.

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Anyone been diagnosed with Intestinal dysmotility, intestinal pseudo-obstruction?