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ADT: How long until I can expect the hot flushes to kick in?
Prostate Cancer | Last Active: Dec 15 1:14pm | Replies (31)Comment receiving replies
I agree with Jeff Marchi's comment - talk to your urologist about a TURP. When my PC turned to stage 4, I was having similar but even more extensive urinary problems. The TUPR procedure was easy and eliminated all those issues for almost four years.
I'd also recommend going back through this group's past posts. While there's some of the last-ditch desperation or poorly informed about alternative treatments, etc., mostly there is much good advice from people who have been and are going through their cancer journey, and are generous with their experience and their empathy. The same is true of Facebook groups the Prostate Cancer Foundation and others sponsor.
I hope you are near enough to some of the major cancer treatment centers that you have good options if you decide to move on from your current RO. Keep doing the research you've been doing and asking the questions that follow. For all of us, a big part of the journey is trying to hang in there with a good quality of life until the next breakthrough or combination of treatments emerges.
Replies to "@climateguy I agree with Jeff Marchi's comment - talk to your urologist about a TURP. When..."
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@jimw77 Thanks for your comment. I like to check in on the comments people are making on this site. I somehow feel better to be in some sort of contact with people more or less in the same boat I find myself in.
When I try to write something in response, sometimes I find my thinking about all the new info I've been taking in since my diagnosis crystallizes into a fuller understanding.
I live near enough to Seattle that I can access treatment centers there. Doctors from Seattle have been prominent in the brachytherapy world for a long time. I was looking at the Seattle Prostate Institute website. They seem primarily oriented towards offering brachytherapy to patients from around the world. At least when they wrote up the website this seems to be what they were into. (The website feels dated somehow).
They have a program where a patient sends in all relevant diagnostic info, like biopsy, MRI and PET scan reports and images, along with the clinical notes of their current doctors, then they take a look and if they think brachytherapy boost or some other therapy they offer (they are promoting Cyberknife, and others) might be applicable, they then contact you to come in for further examination. This sounded like a promising place to start with as I look for someone to give me a 2nd opinion.
My next choice might be Mayo in Tucson. I haven't investigated what they offer, but I know they are NCI designated, and I love Tucson, except for in the hot months. My wife's sister lives there, and my wife and I would love to hang out living in our small travel trailer in that area for any treatment period required.