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Chronic small bowel obstruction from adhesions
Digestive Health | Last Active: Feb 12, 2023 | Replies (212)Comment receiving replies
Hello, I’ve written on here about some of the other problems... Gastroparesis, Crohn’s disease, EOE, slow moving colon, bloating, bruising on my stomach, im sure there is more. My bloating has not gone down in over 6 months. My GI doctor knows that I have a massive amount of scar tissue that could be causing my blockages or obstructions. But no one will do surgery due to the high risk. Basically my inside are cemented together by all the scar tissue. I’ve been going to PT, and acupuncture , to try and get relief. It’s been close to month and not really gotten that far. Does anyone know anything about scar tissue or if the Mayo Clinic has any doctors that deal with it or any studies going on a Mayo Clinic? The pain that comes with all my other issues and the pain and damage my scar tissue is causing along with this bloating is really frustrating. I’ve been looking everywhere to find something or someone and have come up with nothing. Any suggestions???? Thank you
Replies to "Hello, I’ve written on here about some of the other problems... Gastroparesis, Crohn’s disease, EOE, slow..."
@bentley33 I am sorry to hear all you are going through. @hopeful33250 questions are good ones. I also wonder, what type of surgery did you have that caused such massive scarring?
I hope you are able to find a doctor who can help you with this, it must be extremely frustrating.
JK
http://www.laparoscopicsurgeons.com/our-surgeons/mark-reiner.html
I don't know where you live.
I am in NJ. I suffered for 5 years with small bowel obstruction. First, it took nearly 3 years and many doctors to even find out what was happening to me. I finally got a cat scan during an attack that showed small intestinal obstruction.
I don't have to explain the violent pain and long aftermath of the attacks. The fifth-year I was getting them every 3 weeks to a month.
Everyone was telling me surgery would make things worse. I had several hospital stays with NG tubes. I thought this was my life.
Then I found Dr. Reiner and he saved my life. He doesn't take insurance but you can put in the bill (if you have a PPO) and you'll get a decent amount back. To me, it was worth all of the money in the world for my sanity and well being.
I had 4 1/2 feet of intestine taken out on 7/31/17. It was radiation enteritis. I had over 30 abdominal radiation treatments in 2003 for Non-Hodgkins Lymphoma. The attacks started 10 years after my radiation!
I'm passing this on hoping that you find help too.
Wishing you peace, health, and freedom from this nightmare,
Lori
Hello Bentley33, I too am suffering from multiple scarring from so many surgeries ( Gall bladder, appendix, Nissen fundoplication surgery, endometrial ablation, removal of one ovary at a time due to cysts, hysterectomy, bladder mesh implant due to hernia on the neck of bladder with prolapse, rectocele implanted, bladder mesh removal, Botox injections in the bladder for 6 months therapy ( bladder uncontrollable spasms/contractions) Interstitial cystitis with unexplained hematuria) finally bladder removal and with Ileal conduit urinary diversion surgery) CT Scans show thickening of parts of intestine and fluid filled sacks???
The pain every day from eating anything is unbearable...It's a every day decision/? to either sleep for couple days and not eat or eat and spend hours upon hours in the bathroom and Stomach awoken yo up so big looks like I'm 7-8 months pregnant??!!Have been to several diff GI's then referred to Vanderbilt Digestive Disease Center in Nashville TN... Test after test..medication changes..diet changes.. They finally told me " We can't help you,and surgery isn't a option here at Vanderbilt" BUT... we will gladly give you referral to Mayo Clinic. Went to PCP about the referral..I was denied!! Well with my PCP persistent as I am to get some kinda help/relief Mayo in MN taking 2nd look at my medical records and history
I just pray they don't turn me down again 🙏🙏
Connect
Hello @bentley33
As I read about your symptoms I can't imagine who difficult it would be to deal with all of that. I see that you have already been involved in some of the Digestive Discussions here on Connect and the discussion about adhesions might be good to look through again. Here is the link, https://connect.mayoclinic.org/discussion/chronic-small-bowel-obstruction-from-adhesions/?orderby=DESC#chv4-comment-stream-header.
You mention that "no one will do surgery due to the high risk." Is the high risk because another surgery would cause more scar tissues or are there other issues as well?
Also, just wondering what you have tried in the past to deal with the bloating? Has self-massage of the abdomen (on a regular basis) been tried?