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Profile picture for sonofrio @sonofrio

Hi, I’m new to the group but not to MAC. I’m a 68 yr old male in the Philly area and I was diagnosed with MAC 10 years ago. I’ve been on Azithromycin, ethambutol and rifampin 3x a week for 10 years until this year. It broke thru to a new level (my fault, I got lax with my medication). My doctor at the Harron lung center reduced my dosage but went to every day, and put me on Arikayce. Hopefully that will keep it under control.
This fall I also put in a soft water system and a 30,000 joule UV light to kill bacteria before it enters our house. I’ll let the group know if it helps. Trying anything and everything.

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Replies to "Hi, I’m new to the group but not to MAC. I’m a 68 yr old male..."

@sonofrio Wow, 10 years is a really long time! Do you do daily airway clearance in addition to the antibiotics? Nebulized 7% saline has been shown to help slow/stop the growth of MAC as well - do you use it?