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Epilepsy & Seizures | Last Active: 13 hours ago | Replies (64)
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Replies to "@absentsenior I also get absent seizures. I was lucky to work till retirement 4 years ago...."
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@babycat I took lamictal for 8 years and it kept things managed until the blephraspasms started and I eventually had to stop the lamictal after discovering it was a major part of the cause. It's a very rare side effect of long term use. I'm on an extremely low dose of Keppra now that is partially effective but it turns me into a monster with a vicious temper. I'm about to combine it with briviact which has a similar side effect, and pray it doesn't make my temper worse. The side effect of the meds is why I'm looking at RNS. I don't understand how you know your seizures are getting worse if you are unaware. I know my condition is worse because my cognition is worse. My EEG and PET scan showed a lot of abnormal slowing (like the build up to a seizure) that never resulted in an actual seizure but does damage none the less. The slowing doesn't interfere with my activities or awareness as I don't know it's happening and nor would you if you were speaking to me at the time. Retiring will reduce my stress and hopefully reduce my seizures.