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@rhonda1965 My first reaction is OMG! I am sorry you have to wait so long for an appt. The medical field has been changing for the worst. I have seen it first hand. I like you, have been researching whatever I need to including looking up any meds they give me. I tried to get into Mayo and they turned me down. So after my Texas visit to the Neuro-Opthalmologist I looked for one closer to me which is about 90 minutes versus 550 miles one way. The one I saw on Dec. 1st doesn't think I have Occipital Neuralgia. She talked to me for quite some time and then told me that. I had already read about it but I do not have those symptoms. I get head pressure. The Doctors I have seen locally not one of them could help me and I read all my Doctors notes. They think I had headaches and they said it was my blood pressure. But I see my cardiologist and she knows about this and my blood pressure is good. I told them head pressure. The last time I had a headache I was sick and my head was pounding and nothing I could do stopped it. That was a headache and it was over 31 years ago. I haven't had one since. So the Dr. that was 90 minutes away sent a referral to a Neurosurgeon in Mobile at UAB. But I know how long it takes so I have a change in my plans. Through my Dr. I got an appt. of course its in Jan. (30 days from today) to see a Pain management doctor. That is not all they do there. The girl I spoke to on the phone gave me information to look up their website and see the various things that they do. It's not just pain management. They can burn nerves if needed. I will be READY for this visit with questions for sure. I hope you get the answers that you need. I am sorry it will take so long to see someone. @rnlorena

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Replies to "@rhonda1965 My first reaction is OMG! I am sorry you have to wait so long for..."

@rnlorena

Have you figured out any answers or relief on what’s going on with you? I’m reading your posts and started experiencing nearly identical symptoms in November and am getting no answers.

Would love to have ANYTHING to try and point my doctors in the right direction. They keep calling my head pressure “headaches” and it doesn’t feel like the same thing.

They did find cervical spondylosis, but don’t feel it’s severe. Also a brain tumor - but feel it’s not causing any symptoms.

My instinct feels like we’re experience long something messing with our nerves.